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Blood, 15 August 2005, Vol. 106, No. 4, pp. 1199-1202. Prepublished online as a Blood First Edition Paper on May 5, 2005; DOI 10.1182/blood-2005-02-0556. This Article Full Text Full Text (PDF) All Versions of this Article: 2005-02-0556v1 106/4/1199    most recent Alert me when this article is cited Alert me if a correction is posted Citation Map Services Email this article to a friend Similar articles in this journal Similar articles in PubMed Alert me to new issues of the journal Download to citation manager Rights and Permissions Citing Articles Citing Articles via HighWire Citing Articles via CrossRef Citing Articles via Google Scholar Google Scholar Articles by Rigby, H. Articles by Fernandez, C. V. Search for Related Content PubMed PubMed Citation Articles by Rigby, H. Articles by Fernandez, C. V. Related Collections Clinical Trials and Observations Social Bookmarking                   What's this?  Previous Article  |  Table of Contents  |  Next Article  CLINICAL OBSERVATIONS, INTERVENTIONS, AND THERAPEUTIC TRIALS Providing research results to study participants: support versus practice of researchers presenting at the American Society of Hematology annual meeting Heather Rigby, and Conrad V. Fernandez From the School of Medicine, Dalhousie University and the Division of Pediatric Hematology/Oncology, Department of Pediatrics, and IWK Health Centre, Dalhousie University, Halifax, NS, Canada. Offering to provide research results to study participants is gaining increasing support based, in part, on the principle of respect for persons. The frequency and means of this practice is unknown in national and international research communities. All investigators who presented oral abstracts involving human research at the American Society of Hematology Annual Meeting (December 2003) were surveyed. Responses were received from 197 (42%) of 472 eligible investigators. Nonrespondents did not differ in study type or country of origin. Only 30% (n = 48) of those who completed the survey had a formal plan for the return of research results; 40% of these would return both a summary plus individual level results. Of the respondents, 69% (n = 109) supported or strongly supported the practice; only 3% opposed the practice. The most commonly cited reasons for not returning results were: did not consider it (38%), anticipated contact difficulties (32%), and participant difficulty understanding results (26%). Only 11 (7%) indicated that their institutional review board (IRB) mandates the offer to provide results to all participants; this did not vary significantly by country. Given the high level of support in the international research community, evaluation of well-planned interventions for offering to provide research results to participants should be a priority. CiteULike    Connotea    Del.icio.us    Digg    Reddit    Technorati    What's this? This article has been cited by other articles: S D. MacNeil and C. V Fernandez Attitudes of research ethics board chairs towards disclosure of research results to participants: results of a national survey J. Med. Ethics, September 1, 2007; 33(9): 549 - 553. [Abstract] [Full Text] [PDF] S D. MacNeil and C. V Fernandez Offering results to research participants BMJ, January 28, 2006; 332(7535): 188 - 189. [Full Text] [PDF] Minerva BMJ, September 3, 2005; 331(7515): 524 - 524. [Full Text] [PDF]

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